debra of America is a non-profit organization providing free programs & EB support services to those living with Epidermolysis Bullosa. Make a donation and help fund research for a cure. Learn about Epidermolysis Bullosa (EB), a rare genetic disorder, its symptoms, treatments, and personal stories from the EB community at debra of America. Get to know the dedicated team behind debra of America, working tirelessly to support individuals and families affected by Epidermolysis Bullosa (EB). Its mission is to help patients, families, and doctors in countries where there is no DEBRA structure to support them and to assist new groups to form and develop. Explore our Mentorship programs, EB Nurse Educator Program, New Family Advocate Program, debra Care Conference & additional support services. Founded in 1980, debra of America is dedicated to improving the quality of life of all people impacted by Epidermolysis Bullosa (EB) in the U.S. Learn more about our work. When there seems to be no way out, there's debra of America, a lifeline for thousands of families living with “The Worst Disease You’ve Never Heard Of,” Epidermolysis Bullosa (EB). For more information or if you have any questions, feel free to contact us at: Email: staff@debra.org Phone: 833-debraUS (833-332-7287) Our team is here to support you with any questions or concerns regarding EB diagnosis, treatment, and ongoing care. Learn about debra of America's team working to raise EB awareness, and provide EB support to patients and families affected by Epidermolysis Bullosa (EB). Your support is more than a donation —it's a lifeline. With your support, debra of America provides free programs and services that ease the unrelenting physical, emotional, and financial burdens of EB and funds innovative research for treatments and a cure.